Archive for the ‘Star Struck’ Category

Welcome to our Wiggly World

Monday, August 4th, 2008

This weekend our little family took a spur-of-the-moment road trip to Dallas. On Friday we found out that the Wiggles were playing shows on Saturday in Dallas and on Sunday in Houston. We got great seats for the Saturday matinee and hit the road that morning to get to the show on time.

People, it was awesome.

I have had a fair amount of exposure to the Wiggles in the last few years. We started with some CDs that we checked out from the library. Then, in the past year or so, our Vivid Girl has been interested in watching movies… but most “children’s” movies are too scary and intense for her active imagination, so we have been exploring the world of not-scary-at-all entertainment. And this is the world of the Wiggles.

When we first started watching Wiggles videos, I must say I found them a bit creepy. For one thing, I think the Wiggles are a bit older than most children’s entertainers I know…. and they’re all male, which is a bit unusual….. and they have that sort of weather-beaten Australian look…… and I was on chemo, and I’ve discovered that the Wiggles plus chemo is, for me, a kind of irritating combination. (When I’m not on chemo, I like the Wiggles so much more!)

But, you know, the Wiggles have grown on me. Some of their videos are seriously funny: we especially love the one set at the Australia Zoo and starring the crazy and amazing (and now dead) Steve Irwin. For family movie night, we order a pizza, pop some popcorn, set up the PC (no TV), and snuggle up on the sofa to watch one of the many zany Wiggles adventures. At first I thought this would be an exercise in parental self-sacrifice, but I have been surprised to find that the Wiggles are good entertainment for all of us, most of the time.

My particular favorite Wiggle is Anthony (the blue one), while the Vivid Girl loves Murray (the red one). Our whole family adores the friendly pirate Captain Feathersword.

And now that we have had the whole Wiggles experience come alive for us at the concert, I have to admit I am a bit ga-ga for the Wiggles. They were amazing. The show was really great, with awesome stage design, choreography, great sound, amazing feats of derring-do, and really funny bits. Staging something like that, so high energy and intense, that can entertain children without disappointing or overwhelming them…. well, I think it’s a delicate business, and these guys totally nailed it. The fact that the show was also entertaining and fun for parents was a totally unexpected bonus.

and if you read the whole Wiggles biography on wikipedia, like I did this morning, you may be as impressed with them as I am. Considering that they are the highest-paid entertainers in Australia (okay, I realize they don’t have a whole lot of competition right now) they seem to have a lot of integrity and be genuinely interested in what’s good for children.

I do think it’s funny that I have seen two great concerts in the last couple of months: Tom Waits and …. the Wiggles. All I can say about that is, welcome to my world. My wiggly, wiggly world.

Just like a champagne bubble, pop pop pop

Saturday, May 17th, 2008

Well, Tom Waits tickets went on sale yesterday. I don’t know whether the sale lived up to the hype and pre-sale hysteria in selling out immediately or not. What I do know is that I did get tickets, thanks to the devoted efforts of my friend T, who logged on right at 10 am and had a computer fast enough to get me 2 seats right down in front. My two computers were still “searching…. searching….. searching….. ” when she told me she had the seats.

I’m very excited and satisfied to be going to the show the night before my surgery. It seems crazy but it also seems perfect. It feels like I will get a nice big dose of Who I Really Am in The Real World right before one of my biggest adventures in CancerLand. It helps make cancer feel temporary; up to now it has felt pretty permanent. But now instead of being totally lost at sea, I feel like I’m sailing within sight of land. And that is a pretty good feeling.

The Newest Sound Around

Friday, May 9th, 2008

Today’s post will have two parts:

first, a link to the YouTube video of the press conference Tom Waits gave to announce his new tour:

http://www.youtube.com/watch?v=EOrG1r3S6ZA

Second, some ramblings about the book I am reading and various other things of interest and note.

I am reading In a Sunburned Country by Bill Bryson. It’s about Australia. This is the first time I’ve ever read Bill Bryson, although I’ve been meaning to. However, I am fairly resistant to non-fiction and so I was just lucky that a friend took it upon herself to put this book (and many others) into a box and pop it in the mail to me (Thanks, Maria!). So first of all, the book is really interesting because Australia is interesting and also because Bill Bryson is a great writer. It is also laugh-out-loud funny, so that it’s a bit of a challenge to read it in bed if there is a sleeping person in the room with me. It is also un-put-down-able, so I persist despite the difficulty. One thing that I love about Bill Bryson is the way he often ends a story with the sentence “I’m just saying.” It’s one of my favorite phrases and really funny in its way.

I have learned lots of interesting and amazing things about Australia, of the type that make you want to ask people, “did you know….?” For example, did you know that in addition to all the other weird species in Australia, there are also giant earthworms?

By “giant” I don’t mean “twice the size of ordinary earthworms” or anything like that. I’m talking about worms that are 12 feet long and almost 1 inch in diameter. I’m talking about GIANT earthworms.

And did you know that these giant earthworms make a sound? I mean, for all we know all earthworms make a sound, but I’m talking about a sound that humans can actually hear. What happens is this: “If you stomp the ground above them you will be able to hear a gurgling sound coming from under you. This sound is made by the worms moving through their lubricated tunnels as fast as possible away from the disturbance.” Oh, yikes!

And reading this information in my book last night made me want to ask Bill Bryson a “did you know?” question. Because I wonder if he knows about the song that describes the sound made by worms. “There’s a new sound, the newest sound around, the strangest sound that you have ever heard….” I know about this song because I listen to my morning man Jay Robillard on the Lounge Show on my local community radio station, and he plays it from time to time. (He also deejayed our wedding reception but as far as I know he did not play the worm song. He did play “Jeremiah was a Bullfrog,” though, and people sang along.)

Anyway, even though I knew this song, I had no idea there was actually a sound made by worms. A sound that humans can hear. A gurgling, lubricated sound, made by giant worms. At least the sound is made by the worms moving away from you. I’m just saying.

An Open Letter to Tom Waits

Thursday, May 8th, 2008

Oh! I just found out something amazing, which is this: Glitter and Dust. Tom Waits. Summer Tour 2008. When I first looked at the dates the first Texas date I saw was Dallas. June 23rd.

And I can’t go to a concert on June 23rd cause I’ll be in the hospital.

but I looked again, and saw this: Houston, June 22nd.

Wah-Wow!

I will be in Houston June 22nd. It’s the day between my birthday (June 21, summer solstice, longest day of the year) and my bilateral mastectomy (June 23, MD Anderson, pray for clear margins and clean path report).

To me, it seems like the perfect day to see Tom Waits, my all-time favorite. I can’t think of a better way to spend the hours that would otherwise be spent waiting, waiting, worrying.

I’ve never been in the hospital before. I’ve had these breasts ever since they grew there, right around the time I started listening to Tom Waits (okay, the breasts came a little before…. but after so many years it’s all a blur). I’m kinda nervous about this whole mastectomy deal.

Tickets go on sale May 16, one week before my final chemo treatment. And I will do what I can to get tickets, but it’s like buying tickets for a U2 show; they’re going to sell out FAST. In mere minutes, most likely. the last time I saw Tom Waits (the only time, the only time I possibly could have, actually, because he doesn’t play that much) I waited in line starting at 6 in the morning, just hoping I was actually in the right line, because they didn’t announce the location of the ticket sales until 9:00, which was also the start of the ticket sales. (Luckily, I was in the right line, and I got a great seat.) When the announcement came at 9:00 that tickets were being sold at the Paramount Theater box office, people literally stopped their cars in the middle of Congress Avenue, jumped out, and got in line. Two huge herds of people came pounding toward the theater from opposite directions: one group had been standing in line at Waterloo Records, several blocks west, and the other group came stampeding from the convention center or somewhere vaguely to the southeast. It was amazing. It was like an end of the world movie, except that we who were in the right line felt elated rather than terrified. So I guess it was like an end of the world movie. The Rapture. “In the event of Tom Waits tickets, this vehicle will be unmanned.” That sort of thing.

So I really want to go to this show. The timing seems perfect, in a truly unbelievable way. It seems like something I would wish for, but that I would never really expect to happen. It’s like a weird personal hallucination. So obviously I will try to get tickets, but I have decided I will also do this: write an open letter to Tom Waits. See if he will help me out here. It’s a once in a lifetime thing. I will happily pay for the tickets, even if I have to add the cost to my ever-rising cancer credit debt. But I would sure feel a lot of comfort if I knew there were tickets for me, and I didn’t have to stress over getting them.

So here goes.

Dear Tom Waits,

In 1985, when I was a poet, I found a black-and-white ad for Rain Dogs in Rolling Stone magazine. I cut it out and put it in the cover of my poetry notebook, along with other soul-stirring mood-making scraps of media. Rain Dogs is still my #1 Desert Island disk, the canvas I stretch out to live my life against, the perfect album for me… it found me at the perfect time, held me in a perfect place, fused me to the world in a way that I needed. Bam. Music can do that, lyrics can do that. Rain Dogs did it to me.

And I’ve been hooked ever since. So I’m a fan. And I remember things like this: David Lettermen asked you about your parents, what they must have been like, and you said, “Well, David, my father was a tombstone and my mother was a tree.” Terry Gross asked what was the first instrument you ever played and you told her it was a cardboard box. Every time I read “Mr Brown can moo, can you?” by Dr. Seuss, I wish you would record a children’s album and include that book: “Boom boom boom, Mr Brown is a wonder. Boom boom boom, Mr Brown makes thunder. Mr Brown makes lighting, splat splat splat, and it’s very very hard to make a sound like that.” Cue the cacophony. Roll the thunder. Bring out the megaphone. Dance.

So, I’m a fan, and I always wanted to see you perform, and you never played, and I would dream… literally, I would fall asleep and dream that I was walking through some New York/Tokyo/Caligari ghost town and I would turn a corner and walk in through a doorway and there you would be, playing the piano, maybe, singing your songs, wearing a hat. And finally you played in the town where I lived and it was like your only show that year, or the year before, or the year after, I don’t know, and I got to see you play and it was awesome. Really like a dream. Like a Christmas morning when you only get one present but it’s the one you really wanted. A pony or whatever. A sparkly pink jeep. The best thing.

And now it’s years later and I still listen to you when I’m not listening to the Wiggles, and I’ve got a four-year-old tap dancing kid named Vivian Starlight, and I’m not young anymore, and I have cancer. A really crummy kind of cancer called IBC, or Inflammatory Breast Cancer, and it’s rare and it’s deadly and it’s scary and the treatment is this: six months of chemotherapy, wait four weeks, bilateral mastectomy, wait four weeks, once or twice a day radiation for six or four weeks, hormonal therapy for five or more years, wait and see what happens. And I’m just trying to make it so I can be with my kid while she grows up.

I get my treatment in Houston at MD Anderson, which is, you know, a good cancer hospital, and the thing is this: you’re playing in Houston on June 22, which is the day after my birthday and the day before my surgery. So I would really like to go to the show. I think it will transform that in-between day from something scary to something star-kissed and magical. And I’m just wondering if there’s any way you could make sure I could have two tickets…. one for me and one for my dear friend who is flying in from Seattle to be with me. I will gladly pay for the tickets. I’ll even buy a t-shirt! I just would like to know that I have them, if possible, without having to stress about getting up early and getting on line and calling calling calling and being put on hold and not being fast enough.

So, please, if there’s anything you could do to help me, it would really be making a dream come true for me, a dream I didn’t even know I was having, and I would dearly appreciate it. As soon as I figure out where to send this, I’m enclosing a fairy doll that I made during my first round of chemo, and if there’s anything else I could send you I will gladly do it. A jar of Texas salsa? An embroidered tea towel? A Barbie doll whose hair has been replaced with the hair I cut off my own head before I started chemo (I’m making one for my daughter right now: I’ve probably got enough hair for two)? A simple thank you note?

Really, anything. Let me know.

And thanks for everything. It’s been nice having a little company on some of my stranger journeys.

wishing you the best,

glitter, and doom,

Missy Diggs

P.S. I’ve never done this before, written to an artist and asked for something, except once, when I was like 6, and my mom took me to see Peter Pan at the Schubert Theater in Chicago, and I wrote to Sandy Duncan and asked her to send me a picture, and when the picture came in the mail I was so excited I ripped the envelope and tore the photo. All of which is to say, I’m not really a jerk who just goes around asking for things other people have to pay for or stand in line for. I just wanted you to know that if I had thought of it, I would have wished for this show, and I really hope you can understand that and help make sure I get to be there. It would mean more to me than this letter has been able to express. It would help weave this whole cancer experience into the bigger picture of my life, and that’s a job that takes some doing.