What to say?
Wednesday, December 31st, 2008Well, it’s been a heckuva year around here. And I am hoping for all the best for next year, which starts in just a few hours. Especially I want to find more time to be creative and get things done, and spend MUCH LESS time lying around feeling terrible.
The year ended nicely, and today I even graduated from physical therapy, which I had been receiving for my little lymphedema problem (lifelong complication of breast cancer surgery, hurrah for me). It doesn’t mean that my lymphedema is gone, but it does mean that I am now expected to manage it on my own. It’s a lot of work (self massage twice a day, exercises twice a day, wear the sleeve and gauntlet every day, bandage my arm to look like the Michelin man every night, bandage during the day for plane rides and high altitudes) but it is part of my new reality and really does seem manageable.
I am planning to treat myself to an extra sleeve, so I have one to wear while one is in the wash, and I am even hoping to get one of these stylish ones, from LympheDivas.
Now the only question I am struggling with is what to say to people who ask, “what’dya do to your arm?”
Usually I have my daughter with me, and I don’t want her to hear me lying to people about anything to do with my cancer… because I don’t want her to get that weird feeling you get when you hear people tell lies, the feeling that something is not right here, there’s something to hide or fear or be ashamed of. So I usually tell the truth: “Oh, I have lymphedema from breast cancer surgery.” Well, I tell you what: this makes people mighty sorry they asked!
So, even though I don’t want my daughter to hear me lie, I have started to wonder if there’s a better answer.
Here’s what I came up with:
“Oh, that. It’s just an old foozball injury.”
Here’s what my husband prefers:
“well…. I got caught masturbating.”
My physical therapist suggests, “Oh, I just have some swelling and this helps keep it down.” True but not dramatic, which I like. Though I do wonder a bit how important it is for me to let people know the truth about what has happened to me, what is happening to more and more young women like me every year…. Is it my job to educate people about cancer, about how it is all around us and it can strike anyone, how you never know what the person you are talking to is dealing with, how people who look just fine can have serious things going on? And will that help in any way to uncover the causes of cancer and help us change our environment so we can prevent it?
Or do I get to fly under the radar, slip through the cracks in people’s perceptions? I think the answer is yes, sometimes. To all these questions, and many others.